Data sharing policy

The CENTER-TBI investigators are strong believers in international collaboration. In fact the entire project is only possible by virtue of data sharing and mutual collaboration between research teams.

The CENTER-TBI database and repositories on TBI will be an invaluable resource for further research which we would wish to encourage. The database and repositories have been facilitated by public funding. Hence, it is not only from a desire to facilitate research to improve the care of TBI patients but also from a moral obligation to the community to ensure the most optimal return on invested funding, that the CENTER-TBI investigators support the concept of data sharing. With the aim to ensure an optimal use of the data and to prevent possible misuse, the CENTER-TBI management committee has established policies for data sharing as well as policies for publication and publication credits for those who use CENTER-TBI data. These policies further aim to encourage academic productivity and to provide a mechanism for tracking and archiving data requests, intended analyses and publications related to and resulting from the CENTER-TBI data.

The expectation of the CENTER-TBI management committee is that de-identified data of the CENTER-TBI study can be made available to the general scientific community within a relatively short time frame after closing and checking of the database.

Policy

To receive the full data sharing policy, send your request to info@center-tbi.eu

Application

Applicants please provide the following information:

  • Name
  • Address and contact information
  • Academic affiliation (if any) or institution/company name
  • Proposed analysis with a named lead investigator on each analysis. Submission of an analysis plan is aimed to avoid redundant topics.
  • Certification to each point of the data use agreement

Send your application request to info@center-tbi.eu

The application will be reviewed by the study management committee with regard to feasibility and confidentiality. The feasibility will be assessed in discussion with the leaders of relevant work packages. When the application is approved by the study management, the applicant will be requested to sign a data use agreement and will then be provided access to the required data.